We are a patient association that aims to help, support and inform people with vascular anomalies, while supporting research.
VASCAPA is a member of the Rare Diseases Organisation Belgium (RaDiOrg), the League of Health Service Users (LUSS), the Platform for Flemish Patients (VPP) and EURORDIS. VASCAPA also participates in the patient working group of VASCern, the European network on rare multi-systemic vascular diseases.
First edition of VASCA Magazine on vascular anomalies for patients and professionals
The VASCA Magazine aims to inform patients, caregivers and healthcare professionals about the current developments in the diagnosis, treatment and research of vascular anomalies.Read more ...
Discovery of a new blood vessel disease and its genetic cause
Researchers from Prof. Vikkula's group at the Institute de Duve, in close collaboration with the Centre for Vascular Malformations (Prof. Laurence Boon) and the Centre for Human Genetics (Dr. Nicole Revencu) of the Cliniques Universitaires Saint-Luc, discovered a new form of hereditary vascular lesions which they called CM-AVM2.Read more ...
Vascapa Newsletter - January 2017
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ISSVA 22nd Conference International Workshop on Vascular Anomalies
The International Society for the Study of Vascular Anomalies (ISSVA) was officially founded in 1992, two years after its first International Conference on Vascular Anomalies in 1990 in Amsterdam..Read more ...
Generet Award goes to vascular anomalies specialist Prof. Miikka Vikkula
On December 6th 2018 we received the great news that the first Generet Award has gone to Professor Miikka Vikkula for his research to find the genetic causes of vascular anomalies.Read more ...
We are back from the ISSVA 2018 Conference
During the week of May 28th we had the opportunity of attending the ISSVA 2018 conference. The ISSVA is the International Society for the Study of Vascular Anomalies, an organisation that groups specialists in the field and runs biennial workshops/conferences to share information, innovations and best practices.Read more ...