We are very pleased to introduce a brand new publication: the VASCA Magazine!
The VASCA Magazine aims to inform patients, caregivers and healthcare professionals about the current developments in the diagnosis, treatment and research of vascular anomalies. Furthermore, about the work and services provided by the five participating patient organisations, as well as the positive role of the VASCA-WG (Vascular Anomalies Working Group) and VASCERN (European Reference Network on Rare Multisystemic Vascular Diseases) to drive cross-border care.
This magazine compiles scientific articles and interviews with patients and relatives. It also presents the description of VASCERN and VASCA-WG work, educational videos (the Pills of Knowledge), opinion statements for the care of different vascular anomalies (the Patient Pathways), guides of the trayectory of patients (the Patient Journeys), and many other articles like the description of the transversal working groups (the VASCERN Registry project and the ERN Pregnancy and Family Planning group).
This brand new publication is an initiative of the European Patient Advocacy Group (ePAG) members of the VASCA-WG of VASCERN. It was kindly financially supported by VASCERN through its EU co-funding.
The editorial team would like to thank the VASCERN coordination team in Paris and all the authors that made the first issue of the VASCA Magazine possible.
We hope that you will enjoy reading it!
Kind regards, the editors:
Maria Barea (VASCAPA, Belgium), Petra Borgards (Federal Association of Congenital Vascular Malformations, Germany), Caroline van den Bosch (HEVAS, Netherlands), Lex van der Heijden, (CMTC-OVM, Netherlands), Aaike van Oord (LGD Alliance Europe, Netherlands).
Note: This magazine is currently available in English in digital format. We, the patient representatives, would like to continue this work and are currently welcoming financial support and donations to enable future issues and translations.
Please do not hesitate to contact us for any question, recommendation or support offer via .
This publication has been financially supported by the European Reference Network on Rare Multisystemic Vascular Diseases (VASCERN) - Project ID: 769036, which is partly co-funded by the European Union within the framework of the Third Health Programme “ERN-2016 - Framework Partnership Agreement 2017-2021.